Friday, July 25, 2008

No More Tube Feedings, No More Bottles, No More Pediasure

Hello All. I can't believe the time has finally come that we can say good bye to tube feedings, bottles, and pediasure. For Jelly Bean it has been a long hard road. He has been tube fed since one month when he couldn't take in enough calories to keep up with his heart condition. Then during open heart surgery he forgot how to suck and swallow. His reflux was so bad we hard a very hard time getting anything in his mouth without gagging to the point of throwing up. However, with the awesome help of our feeding therapist Ms Megan Jelly Bean is now able to finally eat anything in site, drink all he wants, and maintain his caloric need. We are so excited. The feeding button is being left in for now till we make sure he can take in enough fluids. But wow what a step for Jelly Bean. Next we have Cookie and Spud who had failure to thrive because of horrible acid reflux. So these two needed all the extra calories they could get and couldn't make big changes like taking their bottle away for fear they might stop taking the pediasure. So these past two weeks we dove in head first and took away all the pediasure and bottles. I am happy to report they are both doing great. Eating pretty good and only need to put in a calorie supplement in their milk, from a cup. It is so nice to sit down to a normal family meal, well as normal as the Catz family can be. Time to head off to Mama Land. May the Lord bless you richly till we meet again. Mama Cat
Above was some bubble fun in the big tub I thought I would share. Spud doesn't like bubbles or the big tub so he chose not to be in this one.

2 comments:

Scrapdolly said...

Hi
You wanted to talk to me about the cheetah alpha

It took me a while to figure out how to contact you

Jeanne Selep said...

More memories are triggered by your blog, and wow, did/do you have your hands full. My oldest son had a feeding tube for a very short time, and I wouldn't want to deal with it all with 4 others, plus you mentioned the reflux of 2 other children. I am glad you have Jesus there to help you through things, and probably a host of other people too.